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2024 SESSION
HB 252 Sickle cell disease; statewide registry created, collection of disease case information, report.
Introduced by: Joshua G. Cole | all patrons ... notes | add to my profiles
SUMMARY AS PASSED: (all summaries)
Sickle cell disease; statewide registry; collection of sickle cell disease case information; penalties; notification; annual report. Creates a statewide registry of sickle cell disease patients to be maintained by the State Health Commissioner. The bill establishes: (i) standards and selection criteria for the collection of sickle cell disease information; (ii) penalties for unauthorized use of data from such registry; and (iii) notice requirements for patients whose personal identifying information has been submitted to such registry. The bill allows patients diagnosed with sickle cell disease to self-report information to the sickle cell disease registry. Under the bill, a patient has the right to opt out of having his information reported to the statewide sickle cell disease registry. The bill also directs the Commissioner to submit an annual report of the information obtained from the sickle cell disease registry to the Governor and the General Assembly by November 1 of each year.
FULL TEXT
- 01/04/24 House: Prefiled and ordered printed; offered 01/10/24 24104509D pdf | impact statement
- 03/25/24 House: Bill text as passed House and Senate (HB252ER) pdf | impact statement
- 04/04/24 Governor: Acts of Assembly Chapter text (CHAP0437) pdf
AMENDMENTS
HISTORY
- 01/04/24 House: Prefiled and ordered printed; offered 01/10/24 24104509D
- 01/04/24 House: Referred to Committee on Health and Human Services
- 01/17/24 House: Assigned sub: Health
- 01/23/24 House: Subcommittee recommends reporting (8-Y 0-N)
- 01/23/24 House: Subcommittee recommends referring to Committee on Appropriations
- 01/25/24 House: Reported from Health and Human Services (22-Y 0-N)
- 01/25/24 House: Referred to Committee on Appropriations
- 01/25/24 House: Assigned App. sub: Health & Human Resources
- 02/02/24 House: Subcommittee recommends reporting (8-Y 0-N)
- 02/05/24 House: Reported from Appropriations (21-Y 0-N)
- 02/07/24 House: Read first time
- 02/08/24 House: Read second time and engrossed
- 02/09/24 House: Read third time and passed House (96-Y 0-N)
- 02/09/24 House: VOTE: Passage (96-Y 0-N)
- 02/12/24 Senate: Constitutional reading dispensed
- 02/12/24 Senate: Referred to Committee on Education and Health
- 02/19/24 Senate: Assigned Education and Health Sub: Health
- 02/22/24 Senate: Reported from Education and Health with amendment (15-Y 0-N)
- 02/22/24 Senate: Rereferred to Finance and Appropriations
- 02/29/24 Senate: Reported from Finance and Appropriations with amendment (14-Y 0-N)
- 03/04/24 Senate: Constitutional reading dispensed (40-Y 0-N)
- 03/05/24 Senate: Read third time
- 03/05/24 Senate: Reading of amendment waived
- 03/05/24 Senate: Education and Health Committee amendment agreed to
- 03/05/24 Senate: Reading of amendment waived
- 03/05/24 Senate: Finance and Appropriations Committee amendment agreed to
- 03/05/24 Senate: Engrossed by Senate as amended
- 03/05/24 Senate: Passed Senate with amendments (40-Y 0-N)
- 03/06/24 House: Passed by temporarily
- 03/06/24 House: Senate amendment #1 agreed to by House (97-Y 0-N)
- 03/06/24 House: VOTE: Adoption (97-Y 0-N)
- 03/06/24 House: Senate amendment #2 rejected by House (0-Y 98-N0
- 03/06/24 House: VOTE: REJECTED (0-Y 98-N)
- 03/07/24 Senate: Senate insisted on amendment (40-Y 0-N)
- 03/07/24 Senate: Senate requested conference committee
- 03/07/24 House: House acceded to request
- 03/07/24 Senate: Conferees appointed by Senate
- 03/07/24 Senate: Senators: Favola, Bagby, Head
- 03/07/24 House: Conferees appointed by House
- 03/07/24 House: Delegates: Cole, Mundon King, Hodges
- 03/08/24 Conference: Amended by conference committee
- 03/08/24 Senate: Conference report agreed to by Senate (40-Y 0-N)
- 03/08/24 House: Conference report agreed to by House (95-Y 0-N)
- 03/08/24 House: VOTE: Adoption (95-Y 0-N)
- 03/25/24 House: Enrolled
- 03/25/24 House: Bill text as passed House and Senate (HB252ER)
- 03/25/24 Senate: Signed by President
- 03/26/24 House: Signed by Speaker
- 03/27/24 House: Enrolled Bill communicated to Governor on March 27, 2024
- 03/27/24 Governor: Governor's Action Deadline 11:59 p.m., April 8, 2024
- 04/04/24 Governor: Approved by Governor-Chapter 437 (effective 7/1/24)
- 04/04/24 Governor: Acts of Assembly Chapter text (CHAP0437)