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1999 SESSION

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HJ 524 Study; Statewide Cancer Registry.

Introduced by: R. Creigh Deeds | all patrons    ...    notes | add to my profiles

SUMMARY AS PASSED: (all summaries)

Study; Statewide Cancer Registry. Requests the Joint Commission on Health Care to study Virginia's Statewide Cancer Registry. In 1998 estimate of 1.23 million new cases of cancer nationwide was estimated. The Joint Commission is directed among other things, to examine the effectiveness of the Statewide Cancer Registry as established in Article 9 (§ 32.1-70 et seq.) of Chapter 2 of Title 32.1 to determine the (i) completeness of the data, i.e., whether all necessary reporting sources are required to submit data to enable the registry to collect comprehensive cancer surveillance data; (ii) timeliness of the data reporting, collation, and analyses; (iii) manner and thoroughness of the data collation, including, but not limited to, any geographic and population subcomponents; (iv) uses of the data for prevention, intervention, and treatment analyses and strategies, including education of the public, medical and health services research, treatment evaluations, and public health intervention and prevention; (v) access to the data by experts for research purposes and by the public for educational purposes; (vi) confidentiality of the data in both statistical and individual form and whether individual data should be available to any researchers, the subject of the data or the subject’s family and, if so, the scope of the information to be disclosed and the circumstances for disclosure; (vii) legal basis for the registry and whether this legal authority as reflected in Title 32.1 of the Code of Virginia is sufficient to serve the Commonwealth in monitoring cancer incidence and mortality, guiding cancer control planning and evaluation, assisting in prioritizing health resource allocations, advancing medical and public health research, and contributing to the development of both a Virginia and a national cancer control strategy; and (viii) principles and practices currently in use for cancer control in Virginia and the necessary revisions to these strategies to improve the synergism, sustainability, and effectiveness of the Commonwealth’s cancer control efforts.


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