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1995 SESSION

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SJ 372 Study; ramifications of breast cancer susceptibility gene research.

Introduced by: Janet D. Howell | all patrons    ...    notes | add to my profiles

SUMMARY:

Study; ramifications of breast cancer susceptibility gene research. Establishes a joint subcommittee to study the legal and policy ramifications of breast cancer susceptibility gene research. The joint subcommittee is charged with examining ethical and legal issues, with the exception of matters pertaining to informed consent, which are related to the protection of individuals volunteering to participate in genetic research or seeking medical care involving genetic testing, confidentiality and privacy concerns, life and health insurance coverage and reimbursement, employment discrimination, and other societal implications, such as the ability to obtain housing and credit. The joint subcommittee may also collaborate with the joint subcommittee established to study informed consent for medical procedures and treatment, pursuant to SJR 313 (1995), and seek the views of individuals who have experienced breast cancer, medical ethicists, medical researchers, physicians, nurses, counselors, other health care practitioners, and interested parties.


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