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2006 SESSION

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HB 1391 Congenital Anomalies Reporting and Education System; secure system to be provided.

Introduced by: Clarke N. Hogan | all patrons    ...    notes | add to my profiles | history

SUMMARY AS PASSED:

Virginia Congenital Anomalies Reporting and Education System.  Requires the Commissioner of the Department of Health to provide for a secure system that protects the confidentiality of data and information for which reporting is required to implement the Virginia Congenital Anomalies Reporting and Education System (VaCARES). The system may include online data entry and a minimum data set is specified, including names, gender, diagnosis, etc. The bill deletes current reporting requirements concerning the parent's service in Vietnam and possible exposure to Agent Orange and certain outdated language relating to the Board's regulations.  Hospitals, the only facilities required to report birth defects to VaCARES, are authorized to view personally identifiable information in the system "as approved by the Commissioner and upon receipt by the Commissioner of sworn affirmation from each such person that the confidentiality of the information will be preserved."  This bill is identical to SB 428 (Lambert).

SUMMARY AS INTRODUCED:

Virginia Congenital Anomalies Reporting and Education System.  Requires the Commissioner of the Department of Health to provide for a secure system to collect data relating to congenital anomalies. The system may include online data entry and shall comply with federal and state security and privacy requirements. The bill specifies a minimum data set to be collected. It deletes current reporting requirements concerning the parent's service in Vietnam and possible exposure to Agent Orange.